Monday, September 28, 2009

Update

Sorry it's been over a week since I have been on here. Things have been so hectic with work and kids and other personal things that I just haven't been able to gather all my thoughts. I am not sure I can now! ha!

We had a meeting at school last Monday. It went great! Nothing was mentioned about not letting Peyton stay in school. I was so worried that it was going to come down to that. I explained everything to the Principal about his diagnosis and she is very willing to help out in anyway so that Peyton can adjust to the school setting and schedules. She had lots of good ideas and so did Mrs. Johnson, Peyton's teacher. She started a reward chart for him. Everytime he did what she asked of him and he followed instructions and didn't run away or beat his head on anything he would get a sticker. When he filled up all the spots on his chart he could get a reward. He filled up all 10 spots in 3 days!! He had some very good days last week!

One thing that we decided to do to help Peyton is too have his lunch tray waiting for him at the lunch table in the same spot everyday. The Cafeteria is one of the places that trigger his meltdowns. He would have to make decidions and it was very overwhelming for him and a sensory overload. By doing this he has not had a meltdown in the cafeteria. HE has been smiling and kind of eating. I am very excited about the progress he made last week. Friday was the only day that he had a major fit. IT was very bad. I picked him up from school and he was hysterical because he didn't get a whistle like the other kids did. He got his reward the day before and didn't understand. It took me and his Mrs. Johnson to get him in his carseat and it was tough. He turns into He Man when he has these tantrums. Very strong. HE bit himself, and now has bruises from it and he unbuckled himself from his carseat and tried to get out the car while it was moving. DO you know how hard it is to hold a 4 year old and drive at the same time while he is in the floorboard in the back? Not fun!!! He did settle down and stayed in a good mood the rest of the evening.

I noticed this weekend that his OCD behavior is getting bad again. When he first started his Risperdal they weren't as bad but now the behavior is starting back up. His tantrums are starting to become more frequent and the severity of them is where it was before. He was able to calm himself a week and 1\2 ago but now there starting again. He did this for hrs yesterday. It was really becoming unbearable. I feel so bad because he doesn't hear or get what I am saying to him. He repeats himself over and over. He never stops. This goes on for hrs and ends up in some sort of crying fit. On Sunday I just wanted to scream and run and hide myself. I feelt like such a bad mom. I get so irritated with it and I know he can't help it. It can be very overwhelming at times.

The Dr. increased his meds today so this weekend when I pick them up we will see if that works. I am hoping that eventually he will be stable on a dose and we will be able to keep him there for awhile instead of tweaking and waiting. I know it's all trial and error and he is going to have good and bad days. Don't we all? I just can't imagine what it feels like to a 4 year old to have to deal with the change and stress of everyday activities. I wish I could be in his head to see what he sees and how he feels and what sets him off. I sure love that little guy!!!

Have a great week everybody.

Good Night,

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